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NURS FPX 4060 Assessment 2 Community Resources

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Capella University

NURS-FPX 4060 Practicing in the Community to Improve Population Health

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Community Resources: St. Jude Children’s Research Hospital

St. Jude Children’s Research Hospital (SJCRH) is a non-profit organization in the United States (US) that focuses on treating and exploring catastrophic children’s diseases. Danny Thomas established it in Memphis, US, in 1962 (SJCRH, 2023). SJCRH works collaboratively with healthcare facilities in developing countries to increase children’s chances of surviving chronic diseases. SJCRH seeks to expand access to high-quality healthcare globally to address global disparities.

One of its objectives is to recover pediatric cancer care in underserved regions by providing training and research opportunities through the Global Medicine Fellowship (SJCRH, 2023). This assessment presents an in-depth analysis of SJCRH organization’s goal and vision to ensure the delivery of standard healthcare services for community members.

Mission, Vision, and Public Health and Safety Improvements

Mission of SJCRH

The mission of SJCRH is to treat childhood catastrophic illnesses through clinical research. Its ultimate goal is to prevent child death at birth. All children are treated, irrespective of their cultural background and family’s economic situation. SJCRH primarily serves children near Memphis and affiliated program hospitals through open clinical trials (Hudson, 2024). The mission of SJCRH is to volunteer children in need to have access to fundamental resources, education, and care during disasters. Organization is essential in providing protection services and improving children’s quality of life (Hudson, 2024).

The Vision of SJCRH

The vision of SJCRH is to lead the way in novel techniques for pediatric health care. It is well known for its commitment to expanding therapeutic approaches. The hospital’s vision involves incorporating pediatric cancer practices to improve knowledge and handling of severe problems. The global SJCRH vision involves working together to end pediatric cancer and guarantee healthcare equity. The hospital aims to provide hope for all children and their families, regardless of their financial situation, by offering outstanding medical expertise, education, and support (Martinez et al., 2021).

Initiative of SJCRH

SJCRH initiated its international collaboration in pediatric disease research and directed various projects that support its primary mission. The organization is committed to continuously improving research and treatment to expand the boundaries of medical knowledge. The DIVINCI Consortium, led by SJCRH, focuses on the dissection of influenza vaccination and infection for childhood immunity. This research initiative aims to investigate the impact of flu on the developing immune system and how flu vaccines influence the body’s response to the virus (SJCRH, 2024-b).

It also provides essential community resources, educational opportunities, and active family support programs. SJCRH educates experts on pediatric cancer care in poor countries, ensuring equitable access to quality healthcare. These initiatives support SJCRH’s vision through innovative pediatric healthcare techniques, representing a commitment to global collaboration and ending pediatric cancer, ensuring complete, equitable care for all children (Tang & Pui, 2021). 

Promoting Equal Opportunity and Improving Quality of Life

SJCRH focuses on enhancing children’s care and quality of life in areas of catastrophic diseases and their access to resources. Its complete strategy for resolving social, cultural, economic, and physical obstacles demonstrates the organization’s commitment to health impartiality (Howell et al., 2021). SJCRH faces social barriers that can impact the accessibility and quality of care for children and their families.

Socioeconomic aspects of health facilities include research training, social aid, and engagement in health distribution. Community participation can delay the SJCRH efforts to deliver impartial opportunities and improve quality of life (Garney et al., 2021. Community contribution and training are essential to construct community trust. Healthcare sources, outreach programs, and telehealth initiatives are used to overcome social barriers (Ledesma & Langabeer, 2022).

SJCRH emphasizes cultural diversity, attitudes toward healthcare, and research influence accessibility to medical facilities. Language variations and dissimilar health literacy levels create consultation issues, affecting interactions between healthcare staff and patients. Cultural barriers include beliefs influencing medical verdicts and opposing attitudes toward healthcare (Omenka et al., 2020)SJCRH directs cultural proficiency training for its staff to tackle these problems. Initiatives for community involvement are initiated to foster trust and language skills are integrated to improve communication (Omenka et al., 2020).

NURS FPX 4060 Assessment 2 Community Resources

Financial limitations, family travel expenditures, and the research cost of medical care are critical factors in the economic challenges of SJCRH. Families facing these difficulties struggle to pay for their child’s medical care. Programs for financial aid are applied to reduce economic barriers and guarantee that all patients have equal access to medical care. Implementing funded healthcare services ensures that kids can afford necessary medical care (Zegeye et al., 2021). SJCRH is famous for its devotion to offering eligible families unrestricted medical attention. Financial burdens should not stop a child from getting quality healthcare treatment, travel, accommodation, and daily expenses (Zegeye et al., 2021).

SJCRH actively supports programs that give impartial healthcare to all children. The organization has established a structured communication system with local leaders to improve catastrophic healthcare efforts. Physical barriers can be managed by boosting community well-being and improving healthcare equity and accessibility. SJCRH uses the Agency for Healthcare Research and Quality (AHRQ) analysis on children’s healthcare every two years to evaluate our safety culture. Teamwork, collaboration, staffing, and other factors impacting care delivery of SJCRH staff.

This survey provides a metric to assess the safety of the care given to children and supports efforts toward continuous improvement. Barriers impact the community by hindering accessibility to medical services and creating disparities in healthcare. Physical barriers, including geographic distance, impede immediate healthcare access. These challenges require continuous efforts by SJCRH to improve cultural competency, provide financial aid, and improve healthcare equity (Dumitrache et al., 2020). 

Impact of Funding Sources, Policy, and Legislation

SJCRH sets the standard for pediatric cancer and other serious illnesses to be understood, treated, and prevented globally. The only purpose of American Lebanese Syrian Associated Charities (ALSAC) is to increase the income and knowledge required to maintain SJCRH. St. Jude Global is dedicated to enhancing global children’s lives facing chronic diseases (JCRH, 2024-a). The World Health Organization (WHO) has recognized SJCRH as its sole Collaborating Centre for Childhood Cancer, reinforcing its commitment to advancing detection and treatment on a global scale. Additionally, SJCRH is establishing a health services program in partnership with the WHO and worldwide establishments (SJCRH, 2024-a).

The policies formulated and executed by SJCRH play a crucial role in shaping the organization’s activities and achieving its initiatives. The SJCRH disaster readiness policy, developed in collaboration with the Federal Emergency Management Agency (FEMA), contributes to a comprehensive national disaster recovery framework. FEMA and SJCRH work together to improve the hospital’s disaster awareness and response capacity. To protect patients, families, and employees during emergencies, SJCRH actively participates in FEMA’s initiatives.

NURS FPX 4060 Assessment 2 Community Resources

The collaboration makes it easier to coordinate disaster relief efforts and strengthens the hospital’s resilience and capacity to provide children with life-threatening illnesses with quality care consistently. Health disparities can be eradicated by removing socioeconomic obstacles to the healthcare approach. The disaster readiness policy, developed in teamwork with FEMA, improves SJCRH’s ability to provide steady, quality care during disasters. This practical approach expands coordination, reinforces flexibility, and safeguards the continuous delivery of facilities to children with severe infections (Allegrante & Sleet, 2021).

The job of SJCRH is upheld by several laws that govern its operations. Legislative actions guarantee financing for pediatric research, equitable treatment, and accessibility to healthcare. The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act is one of the provisions that strongly emphasizes funding for research, survivorship care, and better treatment access. Furthermore, SJCRH improves from laws that address health disparities, guarantee comprehensive care, and advance medical science. SJCRH aims to develop the prevention and treatment of life-threatening diseases affecting children living in local communities (Johnson, 2020).

Impact on Health and Safety Needs of Community

SJCRH significantly impacts the community’s needs for safety and health. Children with catastrophic diseases face unique health challenges that SJCRH addresses with innovative research, specialized care, and community outreach. The hospital guarantees equal access to high-quality healthcare by promising free treatment to all patients, regardless of their financial situation, through partnerships with medical facilities globally (Schwartz et al., 2023). Its global initiatives broaden its reach and increase the survival rates of children with cancer. SJCRH improves community safety during emergencies by actively engaging in disaster readiness with organizations such as FEMA. Its grand strategies include research, treatment, and community engagement, substantially contributing to meeting the needs of the communities it serves for safety and health (Schwartz et al., 2023).

Collaboration of Nurses with SJCRH

Nurses actively participate with SJCRH in patient care, from treatment administration to emotional support. Nurses work together seamlessly throughout the multidisciplinary healthcare teams to provide comprehensive, patient-centered care. Their responsibilities go beyond providing clinical interventions, including counseling, education, and care plan coordination. The nurses at SJCRH contribute considerably to the hospital’s mission of finding cures and giving pediatric patients the best care possible through this collaborative synergy (Sullivan et al., 2021).

Conclusion

In conclusion, the dedication to pediatric healthcare shown by SJCRH is global. It addresses a variety of obstacles and works toward health equity, safety, and well-being through cooperative efforts, creative research, and compassionate care. To achieve this goal, nurses must promote a patient-centered and holistic approach to care.

References

Allegrante, J. P., & Sleet, D. A. (2021). Investing in public health infrastructure to address the complexities of homelessness. International Journal of Environmental Research and Public Health18(16), 8887. https://doi.org/10.3390/ijerph18168887

Dumitrache, L., Nae, M., Simion, G., & Taloș, A.-M. (2020). Modelling potential geographical access of the population to public hospitals and quality health care in Romania. International Journal of Environmental Research and Public Health17(22), 8487. https://doi.org/10.3390/ijerph17228487

Garney, W., Wilson, K., Ajayi, K. V., Panjwani, S., Love, S. M., Flores, S., Garcia, K., & Esquivel, C. (2021). Social-ecological barriers to access to healthcare for adolescents: A scoping review. International Journal of Environmental Research and Public Health18(8), 4138. https://doi.org/10.3390/ijerph18084138

Howell, C. R., Bjornard, K. L., Ness, K. K., Alberts, N., Armstrong, G. T., Bhakta, N., Brinkman, T., Caron, E., Chemaitilly, W., Green, D. M., Folse, T., Huang, I.-C., Jefferies, J. L., Kaste, S., Krull, K. R., Lanctot, J. Q., Mulrooney, D. A., Neale, G., Nichols, K. E., & Sabin, N. D. (2021). Cohort profile: The St. Jude Lifetime Cohort Study (SJLIFE) for paediatric cancer survivors. International Journal of Epidemiology50(1), 39–49. https://doi.org/10.1093/ije/dyaa203

Hudson, M. M. (2024). The St. Jude children’s research hospital after completion of therapy clinic. Journal of Cancer Survivorshiphttps://doi.org/10.1007/s11764-023-01519-6

Johnson, K. J. (2020). Disparities in pediatric and adolescent cancer survival: A need for sustained commitment. Cancer126(19), 4273–4277. https://doi.org/10.1002/cncr.33079

NURS FPX 4060 Assessment 2 Community Resources

Ledesma, E., & Champagne-Langabeer, T. (2022). Advancing access to healthcare through telehealth: A Brownsville community assessment. Healthcare10(12), 2509. https://doi.org/10.3390/healthcare10122509

Martinez, H. R., Beasley, G. S., Goldberg, J. F., Absi, M., Ryan, K. A., Guerrier, K., Joshi, V. M., Johnson, J. N., Morin, C., Hurley, C., R. Ray Morrison, Rai, P., Hankins, J. S., Bishop, M. W., Triplett, B. M., Ehrhardt, M. J., Ching‐Hon Pui, Inaba, H., & Towbin, J. A. (2021). Pediatric cardio-oncology medicine: A new approach in cardiovascular care. Children (Basel)8(12), 1200–1200. https://doi.org/10.3390/children8121200

Omenka, O. I., Watson, D. P., & Hendrie, H. C. (2020). Understanding the healthcare experiences and needs of African immigrants in the United States: A scoping review. BMC Public Health20(1). https://doi.org/10.1186/s12889-019-8127-9

Schwartz, L. F., Rikeenkumar Dhaduk, Howell, C. R., Brinkman, T. M., Ehrhardt, M. J., Delaney, A., Deo Kumar Srivastava, Lanctot, J. Q., Armstrong, G. T., Robison, L. L., Hudson, M. M., Ness, K. K., & Henderson, T. O. (2023). The association of neighborhood characteristics and frailty in childhood cancer survivors: A report from the St. Jude lifetime cohort study. Cancer Epidemiology, Biomarkers & Prevention32(8), 1021–1029. https://doi.org/10.1158/1055-9965.epi-22-1322

SJCRH. (2023). Finding cures. Saving children. SJCRH.org. https://www.stjude.org/

SJCRH. (2024a). Our unique operating model. SJCRH.org. https://www.stjude.org/about-st-jude/unique-operating-model.html

SJCRH. (2024b). Research centers & initiatives. SJCRH.org. https://www.stjude.org/research/centers-initiatives.html

NURS FPX 4060 Assessment 2 Community Resources

Sullivan, C. E., Segovia Weber, L., Viveros Lamas, P., Metzger, M. L., Rodriguez‐Galindo, C., & Day, S. W. (2021). A sustainable model for pediatric oncology nursing education and capacity building in Latin American hospitals: Evolution and impact of a nurse educator network. Pediatric Blood & Cancer68(9). https://doi.org/10.1002/pbc.29095

Tang, J.-Y., & Pui, C.-H. (2021). The international collaboration to save children with cancer. JAMA Oncology7(4), 499. https://doi.org/10.1001/jamaoncol.2020.6187

Zegeye, B., El-Khatib, Z., Ameyaw, E. K., Seidu, A.-A., Ahinkorah, B. O., Keetile, M., & Yaya, S. (2021). Breaking barriers to healthcare access: A multilevel analysis of individual- and community-level factors affecting women’s access to healthcare services in Benin. International Journal of Environmental Research and Public Health18(2), 750. https://doi.org/10.3390/ijerph18020750

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